This is the site for the PREPARE study. We are currently in the planning stages. Click the above links for more information, or to contact study staff.
The guiding question of the PREPARE study is: What helps parents prepare for the birth of a child with a genetic condition? And the answer is: we just don’t know for sure. Surprisingly, given how often we talk about prenatal testing as giving parents information that will help them prepare, there are simply no studies … More Does prenatal testing help parents prepare?