In our interviews with family support groups, we’ve learned that preparation means different things for different conditions and different families. We’re presenting some of our early findings this week at the American Society for Bioethics and Humanities 2021 conference.
The guiding question of the PREPARE study is: What helps parents prepare for the birth of a child with a genetic condition? And the answer is: we just don’t know for sure. Surprisingly, given how often we talk about prenatal testing as giving parents information that will help them prepare, there are simply no studies … More Does prenatal testing help parents prepare?
Many women choose to have testing during pregnancy to learn whether their future child is likely to have a genetic condition. Different tests can give women different levels of certainty about what to expect from their pregnancy and birth, but no test can predict the future 100%. … More Prenatal genetic testing
The PREPARE Study 