Skip to content

The PREPARE Study

A research study at University Hospitals Cleveland, Case Western Reserve University, UNC-Chapel Hill, and Mount Sinai Health System

  • Home
  • The PREPARE Study
  • Contact
  • Blog

Category: Preparation

Talking about parent support

October 13, 2021

In our interviews with family support groups, we’ve learned that preparation means different things for different conditions and different families. We’re presenting some of our early findings this week at the American Society for Bioethics and Humanities 2021 conference.

Leave a comment Talking about parent support

Diagnosis begins a journey

November 6, 2018

A new post on The DNA Exchange observes that, while a genetic diagnosis may seem like the end of a journey for a clinician, it’s really the beginning of a lifelong journey for individuals and families. And, even more importantly, that journey isn’t entirely defined by clinical diagnoses or encounters. … More Diagnosis begins a journey

Leave a comment Diagnosis begins a journey

Does prenatal testing help parents prepare?

March 26, 2017

The guiding question of the PREPARE study is: What helps parents prepare for the birth of a child with a genetic condition? And the answer is: we just don’t know for sure. Surprisingly, given how often we talk about prenatal testing as giving parents information that will help them prepare, there are simply no studies … More Does prenatal testing help parents prepare?

Leave a comment Does prenatal testing help parents prepare?

Preparing for birth

June 2, 2016

It may surprise you to learn that even for Down syndrome, the condition most commonly tested for during pregnancy, there are no standard clinical recommendations for how to “prepare” for a birth and a child with the condition. … More Preparing for birth

Leave a comment Preparing for birth
  • Home
  • The PREPARE Study
  • Contact
  • Blog

The PREPARE Study

To learn more, click here.

Search this site

Website Built with WordPress.com.
  • Follow Following
    • The PREPARE Study
    • Already have a WordPress.com account? Log in now.
    • The PREPARE Study
    • Customize
    • Follow Following
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar