Now that we are closing out the PREPARE study, we are excited to note all the ways we are getting our study results out, and point to some places you can read more about what we’ve found. Over the past year, we’ve presented our data to many different audiences: Among our most important findings were: … More Wrapping up the PREPARE Study
We’re thrilled that the first results from the PREPARE study have now been published in the Journal of Community Genetics! This article draws on our interviews with family support groups, and reports on their priorities when communicating with families who’ve recently received a genetic diagnosis, their limitations (especially related to limited funding), and ultimately their … More We’ve published our first results!
It’s been nearly a year since our last blog post, and what a year! At this time last year, hospitals and clinics were just beginning to get a handle on the overwhelming challenges of the COVID-19 pandemic. We didn’t attempt to recruit families during those early months. One thing we did instead: adjust our study … More We’re still here!
The PREPARE Study 