It’s been a while since we’ve posted an update, and during that time we were waiting with bated breath to hear about our grant application. Well, we’re thrilled to announce that we have received funding from the National Institutes of Health to conduct our study! We have four years of funding with which we’ll talk with hundreds of parents, clinicians, and patient advocates about what it means to prepare for a child with a genetic condition.
We’re excited about the next four years of research, and we’ll continue to post updates on this site. If you have questions about the study, you can contact us here.
The PREPARE Study 